Our board

CSA’s Board of directors

Meet the officers and directors of the Canadian Spondylitis Association.

President: Gerald Major (Ontario)

When Gerald was 14 he was very active but something in his knees and feet just didn’t feel right. It took until he was 23 to reach a proper diagnosis but even then he was not approved for biologics.

Treasurer: Sara Khalil (Ontario)

Sara Khalil is a health administration professional with a background in pharmacy services. She is a recent graduate of Ted Rogers School of Management – Ryerson University, and a member of the TELUS Health family.

Secretary: Donna Fedon (Manitoba)

Donna Fedon was born and bred in Winnipeg, Manitoba. She is the Manitoba Representative for the Canadian Spondylitis Association and has been involved with the CSA since 2006.

Director: Sarah Delisle (Alberta)

Sarah Delisle is a 40 years old single mom of two children who lives in Calgary, Alberta. Ankylosing Spondylitis (AS) runs in her family with several members diagnosed.

Director: J.R. Brooks (Alberta)

J.R. Brooks is a 37 years old born and raised Calgarian currently living and working in Calgary as the Director of Operations for Livestock Water Recycling.

Director: Graeme Reed (Ontario)

Of mixed Anishinaabe and European descent, Graeme Reed is on a professional and personal journey of self-identification and reconciliation.

Director: Dr. Jia Hu (Ontario)

Jia Hu is 31 year-old practicing family physician and is in his last year of public health and preventive medicine residency program. He is also an Ankylosing Spondylitis patient.

Director: Marilyn Walsh (Ontario)

Marilyn was  forced to give up a nursing career in her early 20s. Ankylosing Spondylitis changed the trajectory of her life. She was not diagnosed until the age of 35.

Director: Bjillian MacMillan (Quebec)

Developing AS four short months after giving birth to her only child in 2013, Bjillian MacKinnon had to adapt quickly to both the disease and to being a new mother.

Director: Gloria Boudreau (Nova Scotia)

Gloria works fulltime as an IT professional in Halifax, Nova Scotia. After years of trial and error, doctor visits without answers and symptoms that could not be controlled, Gloria was referred to a rheumatologist after her family doctor discovered she needed a hip replacement.

Director: Don Bindon (BC)

Don is a retired RCMP Officer who was diagnosed with AS in 1989. He joined the Ankylosing Spondylitis Association of British Columbia as its President prior to his retirement from policing in 2005.

Director: Paul McCarthy (Ontario)

Paul is a senior management consultant with almost 20 years’ experience of providing business transformation consulting to clients in the U.K., Canada, U.S. and the Middle East.